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In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child Bluebond-Langner Myra

A revealing account of how families adapt to living with a chronically ill childWhat is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on…

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Specifikacia In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child Bluebond-Langner Myra


A revealing account of how families adapt to living with a chronically ill childWhat is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion.The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the

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